Comments for Parent Support Space http://www.parentsupportspace.com From the common cold to pediatric cancer...we have it all! Wed, 26 May 2010 22:48:38 -0400 http://wordpress.org/?v=2.9.2 hourly 1 Comment on Grief & CP (Guest Post by Cheryl) by Shan @ Last Shreds Of Sanity http://www.parentsupportspace.com/?p=1063&cpage=1#comment-3265 Shan @ Last Shreds Of Sanity Wed, 26 May 2010 22:48:38 +0000 http://www.parentsupportspace.com/?p=1063#comment-3265 You are not being a bad mom or bad advocate for your daughter. It's normal to have guilt. I had major guilt about The Diva. She was inside MY belly. She was MY responsibility. I should have protected her. I should have known. It's MY fault she had meconium aspiration and almost dies at birth. I KNOW how you feel. But it's Ok. You can feel it, just don't let it consume you (I learned that the hard way). And yeah, tell the therapist to stop with the snide remarks or you will report her stupid ass. And find her a new one. You are not being a bad mom or bad advocate for your daughter. It’s normal to have guilt. I had major guilt about The Diva. She was inside MY belly. She was MY responsibility. I should have protected her. I should have known. It’s MY fault she had meconium aspiration and almost dies at birth.

I KNOW how you feel. But it’s Ok. You can feel it, just don’t let it consume you (I learned that the hard way).

And yeah, tell the therapist to stop with the snide remarks or you will report her stupid ass. And find her a new one.

]]> Comment on Grief & CP (Guest Post by Cheryl) by Virginia from Lady V dZine http://www.parentsupportspace.com/?p=1063&cpage=1#comment-3264 Virginia from Lady V dZine Wed, 26 May 2010 19:25:47 +0000 http://www.parentsupportspace.com/?p=1063#comment-3264 Totally NORMAL. My son is 29 months old and is affected by the same rare skin disorder I am affected by. He is healthy. He cannot sweat. We have to limit our activities outdoors because his body temp will go from normal to 105 in less than 10 minutes on a warm day. His skin comes off his hands, feet, and scalp. When he gets a boo boo, it takes FOREVER to heal. When another child says they don't want to play with him because of the sores on his hands/feet/scalp, I grieve. I went through the same thing, and it HURT. I don't want him to go through it. So yes, it is normal to grieve when your child is "differently abled." Cyber Hugs. Totally NORMAL. My son is 29 months old and is affected by the same rare skin disorder I am affected by. He is healthy. He cannot sweat. We have to limit our activities outdoors because his body temp will go from normal to 105 in less than 10 minutes on a warm day. His skin comes off his hands, feet, and scalp. When he gets a boo boo, it takes FOREVER to heal. When another child says they don’t want to play with him because of the sores on his hands/feet/scalp, I grieve. I went through the same thing, and it HURT. I don’t want him to go through it. So yes, it is normal to grieve when your child is “differently abled.” Cyber Hugs.

]]> Comment on From in-home therapy to pre-school by Faythe http://www.parentsupportspace.com/?p=1032&cpage=1#comment-2220 Faythe Thu, 28 Jan 2010 05:09:45 +0000 http://www.parentsupportspace.com/?p=1032#comment-2220 (((hugs))) Stef!! I know this will be hard... but maybe it will turn out harder for you than Lil' Miss??? One can pray! my oldest grandson had lots of physical problems that needed to be addressed with surgery & some learning problems too... he qualified for in home OT & PT, but then they tested him around 2 & said he was doing so well he no longer qualified... I don't see him that often, but when I did, I saw the how he has regressed... I mentioned my concerns to my son & dil... they of course poopoo it... but the next time I saw him he was much better, so I think they took my advice & asked the special school they pay to send him 2 days a week ( all they can afford & that is rough) to do extra help... He will need it for awhile. He turned 4 in Dec... I wonder if he will be ready for reg. school at 5? sending prayers for strength & big hugs! Faythe @GMT (((hugs))) Stef!!

I know this will be hard… but maybe it will turn out harder for you than Lil’ Miss??? One can pray!

my oldest grandson had lots of physical problems that needed to be addressed with surgery & some learning problems too… he qualified for in home OT & PT, but then they tested him around 2 & said he was doing so well he no longer qualified… I don’t see him that often, but when I did, I saw the how he has regressed… I mentioned my concerns to my son & dil… they of course poopoo it… but the next time I saw him he was much better, so I think they took my advice & asked the special school they pay to send him 2 days a week ( all they can afford & that is rough) to do extra help…
He will need it for awhile. He turned 4 in Dec… I wonder if he will be ready for reg. school at 5?

sending prayers for strength & big hugs!
Faythe @GMT

]]> Comment on From in-home therapy to pre-school by Angela http://www.parentsupportspace.com/?p=1032&cpage=1#comment-2219 Angela Wed, 27 Jan 2010 20:43:27 +0000 http://www.parentsupportspace.com/?p=1032#comment-2219 These transitions are always so difficult. I taught for years and was a special education teacher for some time. Though I never dealt with children with diagnosed SPD specificly I have dealt with children with autism, FASD, and other issues with similar symoptoms/behaviours. It's never easy but early intervention services and early transition definitely helps to ease the home to school process. I think the most important thing will be maintaining consistency from home to school. So for example the preschool transition program should include similar routines and programming to what has been done at home. If you use PECS at home it should be used at school using the same picture images. If you use stop signs at home to show your child inappropriate places to go or inappropriate behaviours the same again should be used at school. I'm sure the early/special ed workers should do well in working her throught he transition. I think the thing to remember is that it's not a straight up progression. It's still a bit of a roller coaster with ups and downs, good days and bad days but that will not mean it's not working. And yes teachers will sometimes also feel at their wits end but she deserves to be able to develop along side her peers and don't ever let anyone make you feel wrong for advocating for your child!! I hope you find great supports because it is all about that support system and dedicated professionals who don't quit on you and your child even when it gets difficult. Chin up:) These transitions are always so difficult. I taught for years and was a special education teacher for some time. Though I never dealt with children with diagnosed SPD specificly I have dealt with children with autism, FASD, and other issues with similar symoptoms/behaviours. It’s never easy but early intervention services and early transition definitely helps to ease the home to school process. I think the most important thing will be maintaining consistency from home to school. So for example the preschool transition program should include similar routines and programming to what has been done at home. If you use PECS at home it should be used at school using the same picture images. If you use stop signs at home to show your child inappropriate places to go or inappropriate behaviours the same again should be used at school. I’m sure the early/special ed workers should do well in working her throught he transition. I think the thing to remember is that it’s not a straight up progression. It’s still a bit of a roller coaster with ups and downs, good days and bad days but that will not mean it’s not working. And yes teachers will sometimes also feel at their wits end but she deserves to be able to develop along side her peers and don’t ever let anyone make you feel wrong for advocating for your child!! I hope you find great supports because it is all about that support system and dedicated professionals who don’t quit on you and your child even when it gets difficult. Chin up:)

]]> Comment on From in-home therapy to pre-school by Tenille http://www.parentsupportspace.com/?p=1032&cpage=1#comment-2218 Tenille Wed, 27 Jan 2010 20:17:20 +0000 http://www.parentsupportspace.com/?p=1032#comment-2218 I don't know anything about SPD at all, just what I'm learning from amazing mothers like you. I would be nervous too, that's only natural to feel that way with a transition like that. You won't be the first mommy in that position though, remember that. Is there anyone else who has been through those same steps in your area, that you could get in touch with to see how their experience has been? I don’t know anything about SPD at all, just what I’m learning from amazing mothers like you. I would be nervous too, that’s only natural to feel that way with a transition like that. You won’t be the first mommy in that position though, remember that. Is there anyone else who has been through those same steps in your area, that you could get in touch with to see how their experience has been?

]]> Comment on IEP Help by Tweets that mention IEP Help : Parent Support Space -- Topsy.com http://www.parentsupportspace.com/?p=1025&cpage=1#comment-2200 Tweets that mention IEP Help : Parent Support Space -- Topsy.com Thu, 21 Jan 2010 12:15:04 +0000 http://www.parentsupportspace.com/?p=1025#comment-2200 [...] This post was mentioned on Twitter by Amanda, Parent Support Space. Parent Support Space said: New Blog Post: IEP Help http://bit.ly/6qJLkg [...] [...] This post was mentioned on Twitter by Amanda, Parent Support Space. Parent Support Space said: New Blog Post: IEP Help http://bit.ly/6qJLkg [...]

]]> Comment on Back With a New Diagnosis by Tweets that mention Back With a New Diagnosis : Parent Support Space -- Topsy.com http://www.parentsupportspace.com/?p=1013&cpage=1#comment-2045 Tweets that mention Back With a New Diagnosis : Parent Support Space -- Topsy.com Thu, 14 Jan 2010 20:46:44 +0000 http://www.parentsupportspace.com/?p=1013#comment-2045 [...] This post was mentioned on Twitter by Amanda and Amanda, Parent Support Space. Parent Support Space said: New Blog Post: Back With a New Diagnosis http://bit.ly/4YRM4y [...] [...] This post was mentioned on Twitter by Amanda and Amanda, Parent Support Space. Parent Support Space said: New Blog Post: Back With a New Diagnosis http://bit.ly/4YRM4y [...]

]]> Comment on WAT-AHH! Review by Kimberly http://www.parentsupportspace.com/?p=915&cpage=1#comment-1863 Kimberly Sat, 09 Jan 2010 21:58:00 +0000 http://www.parentsupportspace.com/?p=915#comment-1863 Awesome review. I have tried Wat-ahh before and we loved it. So did my kids. They got such a kick out of the graphic. Thanks for adding the pictures. I enjoy seeing REAL pictures compared to company pictures. It makes the review more "real" to me. Awesome review. I have tried Wat-ahh before and we loved it. So did my kids. They got such a kick out of the graphic.

Thanks for adding the pictures. I enjoy seeing REAL pictures compared to company pictures. It makes the review more “real” to me.

]]> Comment on WAT-AHH! Review by Kim http://www.parentsupportspace.com/?p=915&cpage=1#comment-1862 Kim Sat, 09 Jan 2010 21:31:02 +0000 http://www.parentsupportspace.com/?p=915#comment-1862 We've tried Wat-aah and my kids loved it! I wish it was at our local store though. We’ve tried Wat-aah and my kids loved it! I wish it was at our local store though.

]]> Comment on WAT-AHH! Review by brandy http://www.parentsupportspace.com/?p=915&cpage=1#comment-1861 brandy Sat, 09 Jan 2010 10:08:42 +0000 http://www.parentsupportspace.com/?p=915#comment-1861 Wow that's really interesting. I need to see if I can find some for Owen as he is very anti-water .... or well crap maybe even some for me lol. Wow that’s really interesting. I need to see if I can find some for Owen as he is very anti-water …. or well crap maybe even some for me lol.

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